Skip to main content

Realities of Living with Autoimmune Illnesses





An obvious one is my lack of consistency in updating this blog. Since the last time I wrote here, I’ve had 2 flare ups of  2 out of 3 of my conditions, dealt with the madness of the end of the school year ( I’m on the PTA so there’s additional issues on that) , done numerous Summer Stalls for my craft business, House hunted, Moved house & kept 2 sproglets alive all while working my job. Let’s not even go to the emotional fall out that this time of year brings for me.

All this to say, I’m soooooooo tired. Like all the time. I don’t know how I do stuff half the time. Today though, I’m feeling extra guilty about my life. I struggle through the day and end up giving the left overs to my kids and I swore I would NEVER do that to them. I was telling my sister how I was feeling and she was kind enough to tell me I’m nothing like the people I am trying to avoid replicating. The intention is different and I agree with her. It’s not that I can & I choose not to but because I’m simply out of energy.

I’m laying in bed listening to my children’s squeals and I’m reassured. They hopefully will remember the summer that they played with each other loudly without Mum cramping their style!

Comments

Popular posts from this blog

IRL: Crafty Catch Up 2017

Well what can I say? My first ever planner meet up was all I thought it would be! I had an absolute ball. I had wanted to come to the last one but being an islander meant it was just too far for me to consider however things changed when this date was announced. 22nd July was only a few days away from our wedding anniversary. We'd planned to spend it at Disneyland Paris so it made perfect sense to do the crafty catch up on the Saturday, and then continue on to France the following day. Serendipity. What I didn't account for was the mania that it would entail. Kids breaking off for summer Friday afternoon, finishing packing, cleaning the house etc , getting the 7am ferry, driving to Kent, etc on the Saturday. As I arrived, I saw the beautifully laid out Lydd Community Hall. In the hallway was the table plan, I was on table 3... I met great people! I was reminded that all kinds of people love crafts, I was inspired by their creativity Specifically the mummy/daugh

Tick.Tock

Tick.Tock Tick.Tock Tick.Tock I live with a certain sound. One only I can hear. It’s with me every breath I take. I deal with it the best way I know how, researching every darn thing. Still, it makes its presence known. Tick.Tock. I live with a lump. Counting down the days to surgery, knowing it isn’t Malignant (as far as they know) doesn’t help. I know that a new lump can trigger the same processes I know so well. Ultrasound, Core Biopsy, waiting, results. I’m on my 6th cycle. I can never truly relax because I’m living with a bomb in my chest.

What to put in your Hospital Bag for a Mastectomy

I have scrawled across the internet , read lots of blogs and watched lots of videos. Most of which were of an American slant. I have come to the conclusion that the American hospital system is very different to our good old NHS. I asked lots of people who have been through this too. I also used information from the booklet entitled "Planned Admissions" which I was given when I went in for my Wide Excision back in March.  Putting all the above to use, here is what I have packed in my hospital bag . Most British hospitals do not have vast amount of space so you are advised to bring a soft bag not a suitcase. I chose my favourite Cath Kidston X Disney Peter Pan Tote. It's not a big bag either. George Post Surgery PJs (with internal drain management pockets. George Post Surgery Dressing Gown (also with Drain Management) My trusty bedroom boots Fleece Blanket Spare underwear Toiletry bag containing Toothbrush, Toothpaste, Deodorant, Face cream Naty Baby Eco Wipes