Skip to main content

Posts

Showing posts from June, 2019

What to put in your Hospital Bag for a Mastectomy

I have scrawled across the internet , read lots of blogs and watched lots of videos. Most of which were of an American slant. I have come to the conclusion that the American hospital system is very different to our good old NHS. I asked lots of people who have been through this too. I also used information from the booklet entitled "Planned Admissions" which I was given when I went in for my Wide Excision back in March.  Putting all the above to use, here is what I have packed in my hospital bag . Most British hospitals do not have vast amount of space so you are advised to bring a soft bag not a suitcase. I chose my favourite Cath Kidston X Disney Peter Pan Tote. It's not a big bag either. George Post Surgery PJs (with internal drain management pockets. George Post Surgery Dressing Gown (also with Drain Management) My trusty bedroom boots Fleece Blanket Spare underwear Toiletry bag containing Toothbrush, Toothpaste, Deodorant, Face cream Naty Baby Eco Wipes

My Breasts & I - Part 3

I still have my boobs for all of 34 hours 23 minutes and counting. It is a strange place to be let me tell you. I have joined a number of Mastectomy groups to help me cope with everything and I have learnt a lot. I have also realised a few things. I fall into a weird group where I don't have Cancer (as far as i know), the Mastectomy isn't purely Prophylactic as in the case of those with the BRCA gene (therefore high risk for cancer) . I'm as usual, an oddity. A medical marvel that experienced doctors can't fathom. Yet, I have found myself rejoicing, empathising & mourning with these women in my phone. At the end of the day, suffering is suffering. Pain is Pain and we all end up living our lives sans boobies. Another thing that I've realised is my attitude to Cancer. I honestly don't know if it's a good thing or not. However, living with several  lifelong conditions mean that I do ruminate quite frequently about my own mortality. I spent the next fe

My Exercise Vibe with RA ( Rheumatoid Arthritis)

Ever since I was diagnosed last year with Rheumatoid Arthritis, I have been searching for a way to get back to enjoying movement. Prior to diagnosis, I loved to run. Being out in the woods with just the trees and the animals was my favourite thing to do. I wasn’t fond of pounding the pavements, for many reasons, but in the woods, I felt free and was able to push myself, or just wander. I was actually training for a half-marathon with only two weeks to go when symptoms appeared. At first, I didn’t think it was anything as my training was pretty gruelling. One day, after a long run, I took a nap and woke up with the worst pain ever, as well as feeling feverish. That was that, no more long runs for me since that day. I went through all the steps in the cycle of grief. I have finally gotten to a place of acceptance and along with that, I have found that although it hurts initially, exercise does help keep me mobile.. I wrote this post originally for Arthur's Place! To read t

Travel : Lancaster, UK

This past half term holiday, We ( My Hubby, Sons & Myself) travelled to Lancaster. We have spent most of our Holidays down south. So Devon, Cornwall & Dorset. We've done Somerset & parts of Wales too. Anyway, We decided to start exploring the North. We did the Yorkshire Moors a few years ago and I did love how the landscape & architecture defers from down here. I've been reading a lot of Milly Johnson books too. They are typically set in Yorkshire so I've been eager to get up there. Our caravan was in the seaside town of Morecambe. The caravan park did shock us a little with how populated it was. There were A LOT of caravans. We aren't used to resorts like that, there was less greenery that we liked in the park. However, thankfully we don't tend to spend ages on the resort itself. We like to go out and explore the area. We walked into the town centre and saw how rundown bits of it was (like most high streets in the UK currently) , We then st

Tick.Tock

Tick.Tock Tick.Tock Tick.Tock I live with a certain sound. One only I can hear. It’s with me every breath I take. I deal with it the best way I know how, researching every darn thing. Still, it makes its presence known. Tick.Tock. I live with a lump. Counting down the days to surgery, knowing it isn’t Malignant (as far as they know) doesn’t help. I know that a new lump can trigger the same processes I know so well. Ultrasound, Core Biopsy, waiting, results. I’m on my 6th cycle. I can never truly relax because I’m living with a bomb in my chest.

Travel : Brussels (Plannercon Europe 2019)

It's been a while since I did a Travel post on here! It's been a Month since I went to Brussels, hard to believe it really. A lot has happened since then! I bought my earlybird ticket last year, I knew i wanted this adventure to look forward to. I really enjoy travelling as you guys know but I'm finding that I enjoy Solo travel too. Having  RA has meant that I have become cautious and my adventurous spirit has been restless. I have learnt not to count myself out too eagerly. My mobility and stamina might be compromised somewhat but I should still be able to taste life.  Although Plannercon itself was exciting, I loved exploring the home of my favourite detective Hercule Poirot. My favourite bit of the weekend was making new friends.  I took the Eurostar and chose the Standard ticket ( no accessibility perks) the first thing I noticed was how far back the chair was. I used my Jacket to create some lumbar support and it was fine. 2 hours later, I was in Bruss