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Showing posts from December, 2018

Dear Dr, My Pain Matters.

How I know if someone has really crossed a boundary is if I just can’t stop seething about it. Unfortunately, in this case, I’m reminded every time I try and open our stupid door knobs , when I pick up something and it takes forever, when I can’t sleep because every joint hurts, when I wake up and I just know it’s a high pain day. When I dread getting in the car because I know it’s going to be painful. When I struggle to weed vinyl for orders  in my shop Etc etc. 
When someone who doesn’t know what it’s like to be in this body decides that they know better, I get really angry. Just because you can’t see it doesn’t mean it isn’t hard. I’m trying so hard to live my life the way I’d like it to be, trying so my boys don’t miss out to much. I’m doing my best to not let this condition snuff out all the colour in my life. I’m not going to lie, some days are harder than others. 
I just maybe expect a bit more empathy from specialists. 
Is that too much to expect?
I had a weird appointment last we…